Episode 91| Promise from a new drug - and diagnosing neurosarcoidosis is hard.
JUL 03, 2023
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In Episode 91 of the FSR Sarc Fighter podcast, John shares two reports about developments in the treatment of sarcoidosis.  He looks at recent studies published in Sarcoidosis News that show promise for aTyr Pharma's efzofitimod, currently in clinical trials, and also a report from Sweden that shows the difficulty in diagnosing neurosarcoidosis without an invasive and dangerous biopsy.


Show notes:


More on aTyr Pharma: https://atyrpharma.com/


Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq


More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/


The study about neurosarcoidosis: https://sarcoidosisnews.com/news/few-patients-get-definite-neurosarcoidosis-diagnosis-study/


Royce's Cycle4Sarc page: https://stopsarcoidosis.rallybound.org/cycle4sarc?tab=Dashboard&fbclid=PAAaa9zWEjpGVyS1Q5Swa8mm5JT0t7JH13dfxVxdW1QlBMmbiRmc00Ol-uu-c


Royce Robertsons original interview: https://beatsarc.podbean.com/e/episode-79a-royce-robertson-is-fighting-sarcoidosis-from-the-seat-of-his-bike/


Help FSR further its mission by becoming an Alliance Volunteer:  www.stopsarcoidosis.org/gsca-leaders/


Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/


MORE FROM JOHN


John Carlin's Outdoors: https://www.wsls.com/topic/John_Carlin%27s_Outdoors/


Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/


Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser!


If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier


The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/


Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E


My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/


email me  carlinagency@gmail.com


email Royce Robertson  roycelrobertson@gmail.com


 


 


 


 


 


 


 


 


 


 

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