Heart to Heart with Anna
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As an author myself, I understand the power of stories to heal and inspire. Thats why Im thrilled to introduce Deanna Altomara, who created "Chrysalis," a book to help people facing open-heart surgery. Born with a congenital heart defect herself, Deanna understands what it means to have had open-heart surgery. Deannas tale is a testament to how health education and storytelling can intertwine to provide solace and strength to those facing similar battles. Navigating the complex maze of medical procedures and developmental disabilities can be daunting for teens and their families, but this episode illuminates a path of understanding. It was essential for Deanna to create a book for her cousin, who was born with a heart defect and who also deals with developmental disabilities. We delve into the meticulous creation of age-appropriate resources that educate and resonate, merging factual information with fun. Discover how collaboration with an illustrator brought forth a book that captivates without patronizing, and how such tailored storytelling can touch the hearts of its readers and bridge significant gaps in resources. Rounding out our heartfelt talk, we share insights into the creation of indispensable tools that guide parents through the intricacies of surgeries and special needs. In the third segment of the podcast, youll hear my co-editor Megan Tones and me, as we continue reading from . This week, we cover the first half of Chapter 7 which includes David Francos harrowing recovery journey which underscores the essence of resilience. This chapter is entitled "Facing My Mortality" and youll hear essays by Becca Atherton as she confronts lifes fragility and her impending mortality. We also hear from Margaret Raymond as she describes how her mental health has been challenged over time due to living with her congenital heart defects. Despite the inevitable, we find a collective strength in this chapter. Join our supportive community, where every Tuesday, we offer a dose of inspiration and the comforting reminder that no one walks this path alone. YOU CAN FIND DEANNA ON @D.SCRIBING.STORIES ON INSTAGRAM AND HTTPS://DEANNAALTOMARA.COM https://deannaaltomara.com TO SIGN UP FOR A BABY HEARTS PRESS BOOK STUDY, VISIT OUR WEBSITE HERE: HTTPS://WWW.BABYHEARTSPRESS.COM/VOLUME-2 Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
When Ellen Boyers voice joins the conversation, the room lights up with an array of heartfelt stories and powerful messages. Together, we celebrate World Down Syndrome Day by shattering stereotypes and trumpeting the accomplishments of those with Down Syndrome. From the awe-inspiring feat of Chris Nikic, the first athlete with Down Syndrome to conquer an Ironman triathlon, to the everyday triumphs of individuals leading vibrant, fulfilling lives, our dialogue serves as a rallying cry for inclusion and appreciation of every persons inherent worth. The legacy of Brett Boyer shines on, as we discuss the foundation in her memory that advocates for CHD research and support, reminding us how one life can ripple through the hearts of many. Co-editors Megan Tones and Anna Jaworski continue reading from Motherhood, with all its joys and challenges, takes on profound new dimensions when interwoven with congenital heart defects (CHD). The narratives of Megan Hanshew, Gwenyth Murphy, and others paint a poignant picture of resilience and transformation. We also celebrate the active lives of those like Tracie Wendorf-Salgado, living with pacemakers yet refusing to be held back, and Kimberly Russell, whose journey through CHD led to the joyous adoption of her daughter. Join us for an episode thats as much about courage as it is about compassion. Hear the raw, unfiltered experiences of those who not only survive but thrive despite the presence of CHD. Be inspired by Kimberly Russells volunteer work in education advocacy, and be moved by Tracie Wendorf-Salgados near-miss on the highway, a stark reminder of the fragility of life and the indomitable human spirit. This is an ode to the tenacity of the heart, both literal and metaphorical, and an invitation to walk alongside these extraordinary individuals through their remarkable journeys. Links mentioned in this episode: The Brett Boyer Foundation: https://www.thebrettboyerfoundation.org/ Baby Hearts Press: https://www.babyheartspress.com Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
When Ellen Boyer graced our show with her story of love and resilience, it was clear that her daughter Brett, who blessed the world with her presence despite Down syndrome and a congenital heart defect, has sparked a legacy that transcends every stereotype. Through the Brett Boyer Foundation, Ellens dedication to challenging limitations and advocating for CHD research is a beacon of hope that lights up our latest episode. As we celebrate World Down Syndrome Day, we invite you into our heartwarming discussion and extend an open hand for you to join us in spreading the message for World Down Syndrome Day: Stop the Stereotypes. In the 2nd and 3rd segments of the episode, youll hear co-editors Megan Tones and Anna Jaworski reading from The Heart of a Heart Warrior Volume 2: This week theyre reading essays from Chapter 5 in anticipation of the next Baby Hearts Press Book Study, which starts on World Down Syndrome Day (March 21st) from 5-6 PM USA CDT. Its the personal journeys that often strike the deepest chord, and this chapter resonates with stories of tenacity and the transformative power of companionship. Listen to the heartening tale of Monica Mossey and her service dog Jax, whose bond exemplifies the extraordinary support that can come from our four-legged friends. The courage of Tracey Grasty, through multiple heart surgeries and lifes relentless challenges, will remind you of the strength that lies within our community, and the remarkable resilience we can muster when faced with lifes daunting obstacles. We round out the conversation by stepping into the shoes of those whose professional lives are shaped by their personal experiences with congenital heart disease. From Victoria Scoggins journey into healthcare administration to Megan Tones research in rare diseases, these narratives showcase the depth of impact that personal health can have on career choices and the contributions these individuals make to the healthcare field. We end the chapter with an essay by heart warrior and nurse, Roslyn Rivera--a nurse whose practice spanned the globe. As your host, Anna Jaworski, Im here to reaffirm that the power of advocacy and community is just a heartbeat away, and together, we can navigate the landscapes of the heart with courage, dedication, and hope. Websites mentioned in this episode: Baby Hearts Press: https://www.babyheartspress.com The Brett Boyer Foundation: https://www.thebrettboyerfoundation.org/ Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
In this episode of we welcome Frank Jaworski back to the program. Frank shares information about anesthesia when patients go to the electrophysiology lab (EP lab), especially when they need to undergo an ablation. Frank is a certified, registered nurse anesthetist (CRNA) and he has been delivering anesthesia for over 23 years. One of his favorite departments to work with is the EP lab. In this episode, Frank shares some tips to help those in the congenital heart defect community reduce their concerns when visiting the EP lab, he offers some helpful questions patients can ask their anesthesia providers, and even shares some tips for how to reduce anxiety during their EP visits. The 2nd and 3rd Segments involve Anna reading from This is one of the newest books from Baby Hearts Press. This is the second in a 3-book series of essays and works of art by adults with congenital heart defects. In this podcast episode, Anna will read from the front matter of the book, including the Foreword, Preface, and Introduction. Baby Hearts Press is hosting a Book Study for those interested in meeting some of the contributors to ask questions, as well as an opportunity to share their own experiences related to the topics discussed in the book. The Book Study for Volume Two begins on Thursday, March 24th from 5-6 PM Central Daylight Savings Time and runs for 4 consecutive Thursdays. To get a ticket to attend for only $10 per session, visit https://www.babyheartspress.com. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
When Megan Houpt made the heart-wrenching decision to pursue adoption over pregnancy due to her heart condition, it struck a chord with me as a heart mom. Together, we unfold her narrative in this episode, navigating the complexities of adoption with a CHD. From the intricate dance of home studies to the emotional synergy with a birth mother, we journey through Megans path to motherhood. The adoption landscape can be arduous, yet its traversed with hope and culminates in the joyous arrival of Hunter Hart, a name rich with significance. (https://www.facebook.com/HLHSMeaganHoupt) In the second segment of the podcast, we continue reading from This week, we complete Chapter 3: Being Active with CHD. The courage of those facing congenital heart defects takes center stage as we share stories of triumph and transformation. Hear how heart warriors like and Alicia Lynch and Megan Tones find ways to be active, despite having complex congenital heart defects. Megan takes us on an Egyptian odyssey that defies the ordinary. Imagine scaling Mount Sinai and wandering amidst ancient temples, all while balancing the intricacies of medical needs with the thrill of adventure. Her narrative captures the essence of wanderlust, peppered with humor and humanity, proving that even with health challenges, the zest for exploration knows no bounds. Alicia inspires us with her journal entries which lead us from a time of despair to a time of rejoicing. In Chapter 4: CHDs Around the Globe Amy M. Le, Ellen Banoub, and Belen Blanton channel their battles into creating waves of change and offering a helping hand to others within the CHD community. Amys pivot from a tech giant to a champion for indie writers, Ellens leap from a CHD survivor to a beacon of support, and Belen’s recounting of finding God’s mission for her showcase the remarkable resilience and tenacity inherent in our human spirit. Join us, and let these tales of bravery, resilience, and the indomitable will to embrace life’s adventures inspire you. February 2024 Baby Hearts Press announcement Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Navigating life with congenital heart defects (CHD) is a journey of resilience and emotional fortitude. As I converse with my fellow heart mom, Rita Scoggins, we unearth the layers of complexity that come with raising adult children affected by CHD. This episode goes beyond the clinical; it’s an intimate foray into the emotional and logistical preparations for lifes greatest certainties, including power-of-attorney arrangements and will preparations, while also considering the implications for our adult children and beloved pets upon our passing. Segment 2 showcases co-editors Megan Tones and Anna Jaworski reading Chapter 2 of The heart of the chapter beats to the rhythm of personal stories that exemplify the myriad ways individuals with CHD find identity and purpose. From Hope’s inspiring transition and embrace of her true self as a transgender woman, to Jason Crutchleys dedication to volunteerism, and Christie Sillmans leap into a nursing career, these narratives are a testament to the strength found in the CHD community. These journeys illuminate how our warriors, often dubbed so for their battles against physical conditions, also strive for agency and the power of choice in defining their lives. Segment 3 showcases the first two essays from Chapter 3 of Physical activity, often seen as a mountain too high for those with CHD, emerges as a pinnacle of personal triumph in these essays. Lorrie Hills career pivot, and Michael Hills adaptation to sports outside his initial dreams, are stories that underscore the tenacity of the human spirit. These anecdotes are not just about overcoming limitations, but about redefining personal goals and embracing ones passions, all while living with the realities of a congenital heart condition. Join us for this heartfelt exploration of lifes challenges and victories. Won’t you join us while we discuss these essays in our next Book Study? Co-editors Megan Tones and Anna Jaworski are joined by contributors to the book and others who want to discuss the topics raised in the book. These 1-hour sessions take place on Zoom. Visit Baby Hearts Press https://www.babyheartspress.com for more information. Did you miss hearing Chapter One or the Front Matter of the book? Here are the links: Front matter (Foreword, Preface, and Introduction): http://tinyurl.com/H2HwAnnaE434 Chapter 1: http://tinyurl.com/H2HandChapter1 February 2024 Baby Hearts Press announcement Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Navigating the torrent of emotions that come with being a heart mom to an adult child, Rita Scoggins and I, Anna Jaworski, unfold the layers of our unique journey. Our intimate conversation traverses the evolution of care, from the hands-on nurturing of our childrens younger years to the complexities of supporting their maturity and independence. We delve into the potent mix of pride and concern, sharing stories that resonate with anyone who understands the pull of a parents heartstrings as their children, like Ritas daughter Victoria, and Anna’s daughter Hope, carve out lives shaped by both their challenges and triumphs. This episode continues with reading from In this episode, co-editors Megan Tones and Anna Jaworski, take turns reading essays from the book. In Chapter One we read the narratives of heart warriors whove faced body insecurities and the trials of scoliosis with courage. Laura Ryans story, in particular, shines as a beacon of hope; her transformative experience at the waterslides in Lancaster, learning to embrace her surgery scars, offers a deep dive into the power of empathy and connection. We hear how individuals like Michael McKelvey and Dajah Scrivner channel their pain and resilience into poignant expressions of life with CHD. Our episode doesnt simply share stories; it offers a lattice of support, exploring how adaptive clothing and familial love can buoy spirits amidst adversity. As we discuss the importance of finding strength in community and the solace of shared experiences, we invite you to join us in a space that celebrates overcoming obstacles and the beauty of human connection. For all who walk the path with heart-defect warriors, this conversation is a testament to the enduring spirit and the ties that bind us all. RITA’S OTHER PODCAST EPISODES Rita, Victoria, and Heidi Scoggins on : ‘Taking Control of Your Heart Condition’ https://www.spreaker.com/episode/taking-control-of-your-heart-condition--52885553 Rita as a Guest Host on interviewing Laura Ryan. ‘Heart Warrior Mom Raising Children to Adulthood’ https://www.buzzsprout.com/62761/518296 Rita and Victoria Scoggins on ‘Congenital Heart Defect Awareness 2015’ https://www.buzzsprout.com/62761/398983 Learn more about our Book Study https://events.humanitix.com/the-heart-of-a-heart-warrior-volume-one-survival-book-study and join us to discuss the book and share your stories. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
This episode of involves news regarding Heart Month 2024. In this episode, you’ll learn about who our guest next week will be, how Congenital Heart Defect Awareness Day came to be and what it has evolved to. You’ll also learn about how Baby Hearts Press, a publishing company devoted to the CHD community, has a special sale for Heart Month and how we’ll be conducting a Book Study of Volume One of . You’ll also learn about the new writers’ platform we’re working with to create some new books. Scribophile is a place for writers to come together to support one another. Join us in the Heart to Heart group for information for the CHD community. Lastly, I’ll be sharing some behind-the-scenes information about , our Kickstarter campaign, and why I’ve decided to record the audiobook this month—and give it away freely on This episode features the front matter of the Kickstarter edition of the book. The Kickstarter edition of contains the first three volumes in one hardcover edition of the book. In this podcast episode, you’ll hear me reading the poem that starts our book—‘I am a Miracle Child’ by Becca Atherton, the Dedication, Foreword, Preface, Acknowledgements, Introduction, and the opening to Volume One: Survival. Helpful Links: Baby Hearts Press Submission Page: https://www.babyheartspress.com/submissions Baby Hearts Press Bookstore: https://babyheartspress.myshopify.com/ Scribophile Heart to Heart Group: https://www.scribophile.com/groups/heart-to-heart-writing-group/ Victoria and Rita’s episode about CHD Awareness: http://tinyurl.com/VictoriaScoggins Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Embark with us as we illuminate the enduring pulse of Hearts Unite the Globe, the non-profit championing an array of deeply impactful podcasts. From the heartfelt dialogues of to the comforting echoes of , were uniting voices across the congenital heart disease (CHD) community. Our mission extends beyond conversation; its a call to empower, educate, and enrich the lives entwined with CHD and bereavement. Were unveiling exciting tweaks to our website, orchestrated by the talented Lauren England, that streamline your access to our treasure trove of resources and introduce a town hall-style podcast format that embraces the shared experiences of our listeners. The journey continues as we traverse the landscape of loss and healing, led by the poignant narratives from Michael Libens to the hope-infused . As executive producer, I wear my pride on my sleeve for the platform weve created that fosters profound conversations on lifes toughest trials. Dive into the compassionate offerings on the HUG website, where support groups, therapy options, and unique programs like bravery beads await to guide individuals at every step of their heart journey. Discover the myriad of voices represented in our podcasts, including the wisdom of those whove walked the path of grief, and let them be your beacon of light in the darker moments. As the episode draws to a close, we raise the banner for the unwavering support these families need, recognizing the vital role of organizations like the Adult Congenital Heart Association and the Cardiac Neurodevelopmental Outcome Collaborative. The hearts resilience is mirrored in the community itself, where heart-related camps offer solace and solidarity. Your support is the lifeline for our mission, and we invite you to contribute in any way you can—financially, as a volunteer, or simply by sharing our cause. Together, lets forge ahead towards the momentous goal of hiring an executive director, and continue to extend our hand to more families navigating through the world of CHD. Visit the HUG website here: https://www.heartsunitetheglobe.com Another way you can help financially is to subscribe via Buzzsprout here: https://www.buzzsprout.com/62761/supporters/new Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Ever wonder about the emotional odyssey of creating a book that captures the essence of human resilience? My co-editor Megan Tones and I, Anna Jaworski, take you on the intimate trek behind "The Heart of a Heart Warrior," from the flicker of an idea to the jubilance of publication. Our conversation unwraps the passion and dedication needed to weave together stories that resonate with the spirit of heart warriors and their families, reflecting on the Kickstarter campaign that turned our hardcover dream into reality. We invite listeners to be part of our ever-growing narrative quilt, emphasizing that the heartbeat of our work is the voices we empower. Turning the page, we navigate the nitty-gritty of book formatting, a task as challenging as it is crucial. Converting our labor of love into an e-book format presented us with a labyrinth of technical hiccups, where attention to detail became our guiding light. We discuss the importance of meticulous proofreading and editing, ensuring the stories we hold dear dont lose their essence in translation. The warmth and excitement of the communitys embrace of our work remind us that these stories are not just ours—they belong to all who find solace and strength in them. Our episode rounds off with a look at the power of collaborative writing platforms, particularly Scribophile, where we foster the growth of aspiring authors. By moving beyond the confines of Facebook groups, we provide a structured sanctuary for creativity and constructive critique. Sharing the touching narratives of CHD siblings, we shed light on the oft-overlooked heroes whose stories of strength and solidarity are as influential as those of the heart warriors themselves. As we announce future collaborations with co-editors Desiree Vaught and Sheri Turner, we extend an invitation: whether your medium is words or art, your story has a home with us. To learn more about Baby Hearts Press submissions, use this link: https://www.babyheartspress.com/submissions Scribophile group link: https://www.scribophile.com/groups/heart-to-heart-writing-group/ Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Have you ever felt the tug of curiosity towards an approach to mental health that strays from the conventional path? Today, Im thrilled to welcome Valerie Chavez MD and Ryan Hunter to share their insights on functional medicines transformative role in mental health care, especially for those touched by congenital heart defects. Together, we unpack the personalized care that functional medicine offers, emphasizing the power of lifestyle changes and stress reduction to unleash the bodys remarkable healing abilities. Our conversation reveals how addressing the unique underlying causes of health issues leads to profound improvements in emotional and physical well-being. A brush with the serene world of aromatherapy during our discussion spotlights the soothing properties of essential oils, proving invaluable within the high-tension walls of an ICU. We recall how the scent of chamomile provided a tranquil harbor for anxious parents navigating the stormy seas of a childs hospital stay. Through anecdotes and expert advice, we navigate the practicalities of integrating these calming fragrances into stressful environments, while also honoring the deeply rooted emotional connections our sense of smell can evoke. Its a sensory journey that underscores the link between our olfactory experiences and our mental landscape. As our heartfelt dialogue draws to a close, we explore the interplay between spirituality and mental health. Discover how HeartMaths biofeedback tools bring peace and coherence to both adults and children and delve into the ancient wisdom of the Four Agreements, discussing its potential to shape our mental health practices. We also confront the theme of forgiveness, its role in our lives, and the catharsis of releasing resentment. As I bid you farewell until our next conversation, I invite you to continue exploring these topics on the CHC Podcast – Congenital Heart Conversations, where we unite, inspire, and empower the Congenital Heart Disease community through stories and support. WEBSITES YOU MAY FIND HELPFUL: Valerie Chavez’ website: https://gutmend.com/ Ryan Hunter’s website: https://functionalcoachingtx.com/ HeartMath website: https://www.heartmath.com/ BOOK MENTIONED IN THE EPISODE WHICH MAY INTEREST YOU: by Don Miguel Ruiz by Mark Wolynn by Bessel A. van der Kolk by Gabor Maté, M.D. Link to the first functional medicine episode: EXPLORING FUNCTIONAL MEDICINE: HARNESSING THE POWER OF ESSENTIAL OILS AND HOLISTIC HEALTH APPROACHES: https://www.buzzsprout.com/62761/13711353 Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
As I sit back and reflect on Heart to Heart with Anna in the year 2023, I want you to celebrate with me, Anna Jaworski, as we mark a milestone of connection and growth within the congenital heart defect community. From the early days on Voice America to our move to Blog Talk Radio and beyond, weve weathered sponsorship storms and emerged stronger, bringing hope and vital information to those touched by CHD. Join me for an intimate retrospective on our top episodes of the past year, recognizing stories that have resonated and sparked conversations, powered by the voices that have made this journey unforgettable. Stepping into the future, Im excited to open the doors to compassionate individuals eager to make a difference. Your unique skills can shine in various volunteer roles, from scripting heartfelt narratives to amplifying our reach on social media. Our collective efforts support Hearts Unite the Globe, ensuring that no one walks their CHD path alone. I have a particular fondness for LinkedIn as a hub of engagement—let it be the place where you step forward to join our passionate mission. Together, we will continue to be a beacon of light, wrapping the CHD community in a blanket of support and ensuring that every heart feels heard and valued. Top 5 2023 Episodes: Link to #5 Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy with two fantastic heart moms — Melanie Letzer and Kelly Blumenthal. https://www.buzzsprout.com/62761/12993576 An Unseen Threat: The Cody Watkins Story of Heart Failure and Recovery https://www.buzzsprout.com/62761/13210321 Link to #4 Myocardial Bridging and Boots Knighton https://www.buzzsprout.com/62761/12585318 Link to #3 Heart Mom and Heart Daughter on Being a Mom https://www.buzzsprout.com/62761/12765679 Link to #2 Cardiac Chronicles and Community Connections: Leigh Kamping-Carder’s Story https://www.buzzsprout.com/62761/12988991 Link to #1 LGBTQ+ and the CHD Community https://www.buzzsprout.com/62761/11968012 Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Imagine living in a family where sudden deaths were a tragic norm. Thats the reality heart mom Jackie Renford faced before the fateful identification of Long Q-T Syndrome, a genetic heart condition, in her family. Her misdiagnosis and the subsequent loss of her son and daughter have inspired her to become an advocate for early detection and treatment of this life-threatening condition. Journey with us as she shares her familys heart-wrenching story and opens up about the ongoing battle with Long Q-T Syndrome. Jackies experiences with Long QT Syndrome open up a world that is often misunderstood. How do you navigate through life when you and multiple family members are affected by a genetic heart condition? Jackie gives us a first-hand account of the symptoms, diagnosis, and treatment of Long Q-T Syndrome, as well as the emotional toll it takes. She emphasizes the importance of regular medical check-ups, cautious medication use, and a proper diagnosis. Find out how her family is rallying around this, the importance of comprehensive medical care, and how theyre facing the realities and challenges of living with Long QT Syndrome. We may not choose the trials we face, but we can choose to find blessings amidst adversity. In the spirit of finding light in the darkness, I share my own experiences of living with a congenital heart defect and the support that has been instrumental in my journey. As we approach the holiday season, I encourage you to join us in providing free programming for the congenital heart defect and bereaved communities. Its through our stories that we realize we are not alone, and its in our blessings that we find hope. Join us for a profound understanding of Long QT Syndrome and a message of resilience and hope. & SO MUCH MORE https://www.centrahealth.com/centra-news/so-much-more-podcast A bi-monthly podcast where we share the stories of our Caregivers, patients and... Listen on: Apple Podcasts https://podcasts.apple.com/podcast/id1494720604 Spotify https://open.spotify.com/show/2U5lv8DSUBFUi7WLbBeLD4 Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
* How does a young child learn to fight, to survive, and even thrive when theyre born battling a congenital heart defect? Join us as we journey through the inspiring life stories of Emily Falcon and Mabel, two extraordinary women who refused to let their heart conditions define them. Emily, born with the rare ALCAPA--Anomalous Origin of the Left Coronary Artery arising from the Pulmonary Artery, takes us through her harrowing experiences with two open-heart surgeries, and how these experiences have shaped her into the woman she is today. Have you ever wondered how the body adapts itself to survive a chronic illness? Emily provides a firsthand account of her bodys fight for survival, and the challenges she faced, leading to her penning down a memoir about living with chronic illness. Listen to her describe the difficulties she faced in expressing her emotions, the support she found in her friendship with Mabel, and their collective efforts to raise awareness of those with congenital heart defects. Discover the depth of Emily and Mabels friendship, born out of shared experiences and a summer camp for children with congenital heart defects. Hear them discuss the power of being your own advocate, the strength they found in their enduring friendship, and the importance of resources like Emilys book for others going through similar experiences. Through special memories, advice for others, and a best friends forever necklace, Emily and Mabel exemplify the extraordinary strength of the human spirit in their battle with congenital heart defects. Join us as they share their inspiring stories, and remind us that it is not our challenges that define us, but how we respond to them. Link to Emilys Book: https://www.babyheartspress.com/emily-falcon Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Have you ever considered how your lifestyle choices could be affecting your health? Ever wondered about the benefits of essential oils or how to improve your gut health? Then youre in the right place. In a riveting discourse with renowned Valerie Chavez, MD, and Ryan Hunter, we delve into the heart of Functional Medicine. Together, we unravel the mysteries behind this unique approach that goes beyond surface symptoms to identify the root causes of illness. Harness the power of essential oils and understand the importance of sourcing from reputable sources in our exploration of this therapeutic world. Ryan Hunter unveils the secrets of these potent substances, their historical use, benefits in stress relief, sleep induction, inflammation reduction, and more. Imagine enhancing your mental and emotional well-being with the simple application or inhalation of these oils. Intriguing, isnt it? As we wrap up, we shed light on the often overlooked sensitivities and allergies many have towards certain foods. Valerie unravels the importance of an elimination diet and the power of listening to our bodies. Find out about natural remedies for pain and stress, from Epsom salt baths to Arnica Montana and essential oils. Empower yourself with the knowledge to take charge of your health. Join us on this journey of exploring holistic health approaches. Dont just survive; thrive. You can reach out to Ryan Hunter and Dr. Valerie Chavez here: https://functionalcoachingtx.com/ my.doterra.com/functionalcoaching http://my.doterra.com/functionalcoaching https://www.ifm.org/practitioners/valerie-chavez-m-d/ Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Have you ever wondered about the strength that it takes to parent a heart warrior child? What does the journey of raising a child with a congenital heart defect look like? Meet Alison and Brian Blankenship, parents to two children, one of whom is a heart warrior named Ian. Ian was born with a critical congenital heart defect, and his parents are here to share their intimate story of resilience. This compelling episode takes you through the emotional journey of the Blankenships, right from the moment they first received Ians diagnosis. They bravely face the challenges of countless medical procedures, and share the different milestones they have celebrated, each one a testament to Ians resilience. Theres also a deep dive into the strong bonds theyve forged within the CHD community, a source of support that has proven invaluable over the years. The couple touch on the unique grief and isolation that comes with having a child with a heart defect and stress the importance of self-care in their fight against the odds. But thats not all. We also explore their experiences with A Kid Again, an organization that offers much-needed respite to families with children who have chronic illnesses. They share how A Kid Again differs from Make-a-Wish, the empathy it has nurtured in their daughter Haley, and the benefits theyve reaped as a family. Through this enlightening episode, we hope to give you a glimpse of what it truly means to be a heart warrior family, and inspire you to find strength amidst adversity. Join us and discover an inspiring narrative of courage and love. Please check out our Kickstarter! https://www.kickstarter.com/projects/498247588/hearts-united-buy-one-give-one-book?ref=39yflq The Kickstarter is only running for 30 days -- from August 15th to September 14, 2023. If you'd like to Buy-One-Give-One or even just want to show us some love, we really appreciate you! Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Meet Cody Watkins, a beacon of resilience and health, who brushed against mortality when he discovered a congenital heart problem lurking beneath his ripped physique. Unaware of the ticking time bomb in his chest for 30 years, Cody offers a riveting recount of his journey within the world of bodybuilding, his shocking discovery, and how hes courageously navigating life post-heart surgery. Codys story takes an unexpected turn when during a regular training session, his valve ruptures. The wake-up call led him to the emergency room where the reality of his condition hit home. Cody discusses the symptoms leading up to his heart failure, his diagnosis, and the urgent call to action around heart health awareness. Our conversation also touches on his album ‘Home Tonight Forever’, with proceeds dedicated to aiding those affected by congenital heart disease. Brace yourselves as Cody talks about his astonishing recovery - from reversing heart failure to shrinking his heart back to a normal size within a year. We discuss the adjustments to his diet, the role of supplements, and his determination to participate in a bodybuilding show, all while healing. With a fresh lease on life, Codys journey is a testament to the human spirits resilience and an unyielding desire to inspire others walking a similar path. Join us as we delve into Codys extraordinary journey and the valuable lessons hes gathered from his heart condition. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
As a heart mom myself, I know firsthand the unique challenges that come with raising a child with both a congenital heart defect and autism. Thats why I invited Melanie Letzer and Kelly Blumenthal to join me for a candid conversation about their experiences navigating this complex journey. Together, we discuss the importance of trusting your instincts, seeking early intervention, and finding the right support system for your family. In this heartfelt episode, we explore the challenges of getting a diagnosis and the critical role of having an IEP in place to support our children. We share our experiences with ABA therapy during the pandemic and how it has helped us better understand our childrens behavior. We also discuss the importance of connecting with other parents for emotional and practical support, and how tenacity and a willingness to try different approaches are essential when it comes to finding the right program for your child. Our journey as parents has shown us the power of advocacy within the congenital heart community. Throughout this episode, we emphasize the need for early intervention, support, and utilizing trusted medical resources to provide the best help for our children. By sharing our experiences, we hope to inspire and empower you to become an advocate for the congenital heart community, and ensure that our neurologically and cardiac-challenged children receive the care and attention they deserve. Just a quick "Thank You" to all the awesome social media supporters of ! Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
What if you could find a space to share your story, ask questions, and connect with others living with congenital heart conditions? Join me as I chat with Leigh Kamping-Carder, founder and writer of "The Heart Dialogues," a free newsletter that does just that. We discuss Leighs own experience of living with tricuspid atresia, a single-ventricle defect, and her journey navigating two different approaches to cardiology - one in Canada and one in the US. In our conversation, we explore the medical trauma that comes with surviving open-heart procedures and the importance of addressing and normalizing this often unspoken aspect of living with a heart condition. Leigh shares her unique perspective on the differences in care she experienced as an adult with a cardiac condition in Canada and the United States, and the potential benefits of a more laid-back approach to care. Discover the choices patients can make when considering their health care and the impact of different philosophies of care. Lastly, we talk about the importance of writing and reading for those with congenital heart conditions and how Leighs journalism background has played a vital role in creating "The Heart Dialogues." Listen in for Leighs advice on carving out time to write and her understanding that her life and health are finite, fueling her mission to help others. Dont miss this heartfelt conversation with Leigh Kamping-Carder, and be sure to check out "The Heart Dialogues" for more candid conversations and support within the congenital heart community. To read Leighs newsletter or to contact her: The Heart Dialogues newsletter: theheartdialogues.substack.com Leighs Twitter handle: @Leigh_KC twitter.com/Leigh_KC To reach Anna, visit: https://heartsunitetheglobe.org or email her at Anna@hearttoheartwithAnna.com To purchase go to https://quillhawkpublishing.com/products/snow-in-vietnam-a-historical-fiction-novel Thank you to all of my wonderful Listeners who take the time to let us know on social media that you like what you're hearing. "Can't Take Our Love Away (Instrumental Version) https://www.jamendo.com/track/628324" by Josh Woodward (Instrumental Versions) https://www.jamendo.com/artist/354648/Josh_Woodward_(Instrumental_Versions) is licensed under CC BY 3.0 https://creativecommons.org/licenses/by/3.0/?ref=openverse. Thank you! Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
What was it like to give birth to a baby with hypoplastic left heart syndrome (HLHS) in the 1990s? How would it feel like to watch that miracle child grow up to become a mother herself? What is it like to then see your daughters daughter for the first time? Answers to those questions and many more will be answered in this Mothers Day Special episode. Meg Didier is a 30-year-old hHLHS survivor and a mother. After we finished recording her episode, “HLHS Survivor and Mother” earlier this year, I said it would be so wonderful to have her back on the show with her own mother for May 2023, especially in celebration of Mothers’ Day and she agreed. Patty Hansen and I “met” online over two decades ago, when the Internet was young. We met via a listserv and shared inspiring stories about our heart warriors, questions we had, and shared concerns. We prayed for one another, gave helpful advice, and encouraged one another. When I decided to put together an anthology of stories by women around the world affected by congenital heart defects, Patty contributed an essay entitled ‘Finding the Good,’ which you can read starting on page 179 of “The Heart of a Mother.” This is my first time to actually speak with Patty! & SO MUCH MORE https://www.centrahealth.com/centra-news/so-much-more-podcast A bi-monthly podcast where we share the stories of our Caregivers, patients and... Listen on: Apple Podcasts https://podcasts.apple.com/podcast/id1494720604 Spotify https://open.spotify.com/show/2U5lv8DSUBFUi7WLbBeLD4 To purchase go to https://quillhawkpublishing.com/products/snow-in-vietnam-a-historical-fiction-novel We so appreciate everyone who likes, loves, or gives our social media posts a happy emoji. We also appreciate people who share our posts or engage in conversation with us. Thanks, too, to the people who just started following us on Instagram, YouTube or other social media platforms. We appreciate you all! Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Boots Knighton is a 45-year-old myocardial bridging survivor from Victor, Idaho, and an avid mountain biker. She suffered a heart attack while biking when she was in her 40s. To correct the myocardial bridging, she underwent open-heart surgery in 2021. Her experiences have inspired her to start a podcast, called “The Heart Chamber,” and she is also working on a book. In this episode, well learn about how Boots condition was diagnosed, why she started a podcast, and how shes also writing a book. Links mentioned in this episode: The Facebook group that saved Boots life: https://www.facebook.com/groups/MyocardialBridge Boots podcast, The Heart ChamberBoots blog: In this clip, Anna thanks listeners of "Heart to Heart with Anna" and asks them to keep the comments on the podcast episodes coming! Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Dana Henning is mother to Evan Henning, who is a 12-year-old Heart Warrior born with a critical congenital heart defect. Evan has has multiple procedures and open-heart surgeries. His life is very full of therapy appointments, homeschool activities, and extra-curricular activities such as Special Olympics and track. Dana is musically gifted. She is a former music teacher and choir director. These days she homeschools Evan and works as the Mended Little Hearts Austin Coordinator. She also works with the Parent Faculty Advisory Counsel at Dell Children’s Hospital in Austin, Texas. She serves on the Cardiac Patient & Family Partners team and her family is a member of the Dell Children’s Trust. In this episode, Dana talks to Anna about what Mended Little Hearts does for the congenital heart defect community, how she is involved, and some of the activities the Austin Mended Little Hearts organization participates in. Of special note is an event occurring at an ice skating rink in Cedar Park in April 2023. Links mentioned in this broadcast: Danas other appearance: https://www.buzzsprout.com/62761/770246 Mended Little Hearts National page: https://mendedhearts.org/about-us/about-mended-little-hearts/ Austin Mended Little Hearts Facebook page: https://www.facebook.com/MendedLittleHeartsAustin Email: mendedlittleheartsaustin@gmail.com The Heart Dialogues: https://theheartdialogues.substack.com/ Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Todays episode features Vicky Gooden, the author of and the winner of the 2022 Baby Hearts Press People’s Choice Award. In this episode, we will hear about how Vicky came to write her book, what it meant to her to win the BHP People’s Choice Award, and what the future holds for this very special author and her book. Vicky Gooden is a senior consumer marketing professional with a career spanning over 18 years. She spent 15 years in the creative entertainment industries, working with record labels and broadcast television. She headed up United Kingdom and international marketing teams. Now Vicky is a freelance marketing consultant working with small businesses in industries, including interior design and healthcare. A full-time mother, Vicky, understands the rigors of motherhood. She is a blogger and encourages other bloggers, as well. In the congenital heart defect community, she is probably best known for the book she wrote, which is a children’s picture book about a little girl and her scar, based on Vicky’s own daughter, who was born with a congenital heart condition. This promo tells people about the raffle we have as HUG's fundraiser in early 2023. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Welcome to the 4th and final Medical Monday mini-series episode of for Heart Month, February 2023. How can you do heart surgery through a hole in the groin? It seems like magic, but is it? What is a Maze Procedure? Why might someone need a pacemaker, even if theyve had an ablation? How can heart valves be replaced via catheterization? Tune in to hear certified, registered nurse anesthetist, Frank Jaworski, explain how these heart surgeries can occur, what kinds of problems doctors face when doing these procedures, and why anyone would want to have a procedure done this way rather than through open-heart surgery. If you enjoyed this episode, you might enjoy the other Medical Monday episodes for Heart Month, February 2023: A PARENT HEART-LUNG MACHINE: THE ULTIMATE GIFT https://www.buzzsprout.com/62761/12289338 MEDICAL MONDAY #2: MONKEY LUNGS! https://www.buzzsprout.com/62761/12242283 HEARTWORKS UPDATE 2023 https://www.buzzsprout.com/62761/12191542 This promo tells people about the raffle we have as HUG's fundraiser in early 2023. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
This is the final Heart Dad Sunday mini-series episode for Heart Month, February 2023. Frank Jaworski, Anna Jaworskis husband, and Heart Dad to a single ventricle heart warrior is back as the Guest Host. In this episode he interviews Dan Rodenbaugh. Dan is father to Caylee Rodenbaugh, who was born on June 26, 2009, at St. Luke’s hospital in Lee’s Summit, Missouri. Caylee is his fourth daughter, but the first one with a heart condition. Dan Rodenbaugh is 52 years of age and he’s been happily married to Marie for 27 years. He was born with a heart defect and was treated at Children’s Mercy Hospital until he was 18 years old. He had a heart murmur which led to the discovery of his heart condition. Regardless, he did sports, including football, although he tired easier than other athletes his age. In this episode, Frank talks to Dan about growing up with a congenital heart defect, what it was like to find out that his daughter also had a congenital heart defect, and what advice he has for his daughters and others when they have a history of congenital heart defects in their families. This promo tells people about the raffle we have as HUG's fundraiser in early 2023. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
This is our final episode for our Saturday Success Stories mini-series for Heart Month, February 2023, and its hard to imagine any greater success story than the 40 Heart Warriors who have come together to create an amazing anthology called This is the book that these Heart Warriors and their families and friends would have loved to have read to help them better understand what it means to live a life with a broken heart. Co-editors, Anna Jaworski and Megan Tones, open this podcast by talking about what the process of putting together a book like this has been like. They then take turns, just as they do in the book, with conducting mini-interviews with a handful of Heart Warrior contributors in the 2nd and 3rd segments. Youll hear about new projects these authors are working on, how their lives have changed over the years since this project first came to be, or why they chose the topic they did. Anna hopes even more of the Heart Warrior contributors will share their experiences with the world, too. This promo tells people about the raffle we have as HUG's fundraiser in early 2023. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
With congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their own. But some people have more serious heart conditions. In this special mini-series episode for Heart Month 2023, Anna asks her Listeners to identify some famous movies which depict someone with a congenital heart condition (CHC). Since congenital heart conditions are ubiquitous, its interesting to see how people with these conditions are portrayed in the movies and what role the CHC plays in the movies plot. Do you think the movies we chose did a good job of showing the world what its like to have a CHC? Send us an email to Anna@hearttoheartwithanna.com to let us know what you think! Other Links To CHD in Society episodes you may enjoy: CHDs in Society #3: The Musicians https://www.buzzsprout.com/62761/12273541 CHDs in Society #2: The Athletes https://www.buzzsprout.com/62761/12209527 CHDs in Society #1: The Entertainers https://www.buzzsprout.com/62761/12173766 This promo tells people about the raffle we have as HUG's fundraiser in early 2023. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Welcome to the 4th CHD Spotlight episode for Heart Month 2023. Our Expert Guest is HUG MAB member, Chris Donald. Chris Donald is a pediatric cardiology nurse she was born with a complex congenital heart defect. Chris Donald also serves on the Hearts Unite the Globe Medical Board. Todays CHD Spotlight is on a type of heart defect commonly referred to as “TGA” or “TGV” -- transposition of the great arteries or transposition of the great vessels -- which are synonyms. Well also learn about the difference between L-TGA and D-TGA, as well as, what cc-TGA means. The other episode featuring Chris Donald, RN: Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients https://www.buzzsprout.com/62761/3725774 This promo tells people about the raffle we have as HUG's fundraiser in early 2023. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Here is another episode in our Wednesday Writer Chat series of “Heart to Heart with Anna.” This is a special mini-series produced for Heart Month, February 2023. Today’s show is and our Guest is Faith Brackett. We’ll start today’s program by learning a bit about Faith and her health condition in Segment 1. In the second segment, we’ll talk about how Faith came to write a book and in the final segment, we’ll talk about how Tablet Talk and how Faith and her sister are working to help other children in the hospital. Faith Brackett was born in the mid-1990s with HLHS. She has had 8 open-heart surgeries and was the first child to undergo what is now known as the bi-ventricle repair. She also received a valve-in-valve tricuspid replacement via the cath lab. She has a Bachelor’s Degree in K-8 Elementary Education and a minor in Psychology. Faith has worn many hats, including educator, advocating for people with CHD, serving with CHD organizations, member of the Ultimate International Miss Organization, author, founder of CHD Tablet Talk, speaker, and content creator/ blogger. Links related to this Guest: www.faithbrackett.com www.chdtablettalk.org Instagram: @faithbrackett_ This promo tells people about the raffle we have as HUG's fundraiser in early 2023. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
Lilac Lumpkin is a mom to angel Heart Warrior Jaxon, who was born with HLHS. Jaxon loved many things in his life: pizza, superheroes, mac & cheese, and his mom. He never complained and never gave up. Jaxon lived to 5 years of age - 3 years longer than the doctors expected. To honor his life, Lilac started promoting a charity "Warrior Pets and More" which provides comfort and support to children living with special needs and raises awareness for a range of illnesses and disabilities. The charity provides children with their own “Warrior Pet,” a customized stuffed animal embroidered with the child’s name and inspirational messages and shares the child’s story on their Facebook page. Every year for Jaxon’s birthday, Lilac and her husband Michael sponsor as many Warrior Pets as they can to bring joy to others. Lilac is also a stepmom to three wonderful children. Link to Warrior Pets and More: https://www.facebook.com/profile.php?id=100086189692329 This promo tells people about the raffle we have as HUG's fundraiser in early 2023. Support the show https://www.patreon.com/HearttoHeart Annas Buzzsprout Affiliate Link https://tinyurl.com/3f8u4242 Baby Blue Sound Collective https://tinyurl.com/BBSCmusic Social Media Pages: Apple Podcasts https://tinyurl.com/HUGpodcast Facebook https://tinyurl.com/H2HwAnnaFB Instagram https://www.instagram.com/hearttoheartwithanna/ MeWe https://tinyurl.com/HUGMeWe Twitter https://twitter.com/AnnaJaworski YouTube https://tinyurl.com/H2HwAnnapodcast Website https://tinyurl.com/4kuckfn7
