The Way We Roll
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Bristol City Council recently reversed their planned cost-cutting strategy, which would have impacted independent living for disabled people. The UK government recently reversed the proposed closure of ticket offices at railway stations, which would have had an impact on disabled people. Sophie Morgan, the Rights on Flights campaigner, appears to be close to getting legal rights for disabled people on flights. Is campaigning stronger than ever? We talk through the possible renaissance and ask, is it all it seems? At the end of February this year, the UK Government’s Health Select Committee published findings on Assisted Dying / Suicide. Phil picks through its findings and gives an update on the Not Dead Yet campaign. We finish with good news from Europe, with Mar Galcerán making history as Spain’s first parliamentarian with Down’s syndrome. Another barrier knocked down. LINKS: Bristol City care plans https://www.bbc.co.uk/news/uk-england-bristol-68231455 Transport for All - Ticket offices https://www.transportforall.org.uk/take-action/campaign/not-just-the-ticket/#:~:text=October%2031%202023:%20Victory!,to%20scrap%20the%20plans%20completely. Rights on Flights https://www.disabilityrightsuk.org/news/rights-flights-dr-uk-and-sophie-morgan-launch-new-campaign Health Select Committee report on Assisted Dying / Suicide https://committees.parliament.uk/committee/81/health-and-social-care-committee/news/200140/mps-publish-report-on-assisted-dyingassisted-suicide/ Mar Galcerán in Spanish parliament https://amp.theguardian.com/world/2024/jan/09/mar-galceran-makes-history-spain-first-parliamentarian-downs-syndrome
How would you feel if your local authority suggested you move from your home of 30 years to a residential care home because they need to save money? Its something Bristol City Council were proposing for disabled people as they try to reduce their deficit. Although this proposal has been shelved, it might not be the last time we see it. We explore the reasoning, impact and resistance. Becoming disabled can bring a complete change of outlook, and you might reflect on who you once were. The author, Hanif Kureishi (My Beautiful Launderette, The Buddha of Suburbia), lost the use of his arms and legs in late 2022. He makes headlines with his newfound frustrations and doesnt hold back, but is he, a year later, finally adjusting? We discuss how people adapt, how long it takes and how non-disabled people might ignore disability until it impacts them. Phil and Simon are passionate about these subjects. You will hear us disagree agreeably, with added swearing and raised voices. LINKS: Hanif Kureishi: Ive become a reluctant dictator https://www.bbc.co.uk/news/entertainment-arts-67787423 Hanif Kureishi on the hell of life after his accident https://www.channel4.com/news/i-dont-know-if-i-will-ever-hold-a-pen-again-hanif-kureishi-on-the-hell-of-life-after-his-accident The Kureishi Chronicles - Hanifs blog https://hanifkureishi.substack.com Francis Ryan in the Guardian https://twitter.com/DrFrancesRyan Think of this: a plan to warehouse disabled people. What kind of nation is Britain becoming? https://www.theguardian.com/commentisfree/2024/jan/25/warehouse-disabled-people-bristol-city-council"
‘Know your audience and communicate to as many people as you can, including disabled people’, says Sarah Brown Fraser on effective, accessible communication. That Sarah can whittle information down to valuable nuggets might be a consequence of her role as Head of Communications and Policy at the Activity Alliance. As our guest, Sarah is timely, with accessible and inclusive communications being a hot topic. How do we communicate effectively with a diverse audience via various methods: print, website, social media, video, web links, in-person and even emojis? Is there such a thing as a fully accessible comms? Sarah helps us with what we need to think about initially and how to adjust as we go along. From Liverpool with aspirations to be a TV Presenter, Sarah has found her niche in communication. Before starting work, Sarah moved from Merseyside to London to study for a BA in Media Studies at the University of East London. It was the mid-90s, but she was the first student with a disability to do her course. She is also an Everton supporter. LINKS Activity Alliance https://www.activityalliance.org.uk Sarah Brown Fraser LinkedIn https://www.linkedin.com/in/sarah-brown-fraser-17813125/?originalSubdomain=uk Business Disability Forum Inclusive Communications toolkit https://businessdisabilityforum.org.uk/knowledge-hub/toolkits/inclusive-communication-toolkit/ Activity Alliance Effective Engagement Factsheets https://www.activityalliance.org.uk/how-we-help/resources/7070-effective-engagement-factsheets UK Government Accessible Formats https://www.gov.uk/government/publications/inclusive-communication/accessible-communication-formats
Our guest is Andrew Miller, the Chief Executive Officer of Motability Operations (MO). Many of you will know of this unique organisation. Indeed, some of you will be customers. The Motability Scheme leases cars, powered wheelchairs and scooters to more than 700,000 disabled people in the UK. It is the largest car fleet in the UK. Andrew heads up the schemes delivery, ensuring customers have a range of affordable options to stay mobile and ensuring the company stays on the right financial road. It’s not an easy job with many challenges. The switch to electric vehicles is well underway, and it disproportionately impacts disabled people in terms of access, charging accessibility and price. As MO buys and sells 200,000 cars a year, small price fluctuations can significantly impact the financial model. Still, they must also maintain a consistent offering to their customers. Stakeholders aren’t just scheme customers; there’s the oversight from the Motability Foundation, successive governments, and the press, which often take an interest. In an open conversation, we explore with Andrew the biggest challenges in the recent past and what the future looks like. Although he may be highly experienced in finance and business, he’s new to disability, and we check in with him to see how he is getting on. Links: Andrew Miller background Motability Scheme website How the scheme works Motability Operations corporate website Motability Foundation
Simon was at the airport recently. He was on his mobility scooter, and his mum was using an airport wheelchair. Looking at the long line in the disabled passport queue, his walkie-talkie sister and cousin decided to move to the non-disabled line. We explore what happened and how it made Simon feel. The Business Disability Forum has produced a second adjustments in the workplace piece of research. Both managers and individuals who are Deaf, disabled or neurodivergent responded. Phil picks through the key findings. History is littered with new businesses created to serve disabled consumers that weren’t viable. It feels different now. Simon asks, with the growth in service providers, including bespoke clothes makers, the hotel and leisure industry and accessible car and van hire, has the Purple Pound finally landed, and how do you cater to the diversity of disabled people? Oh, and Bake Off want to hear from you. LINKS Business Disability Forum has produced another piece of research on adjustments in the workplace https://www.hrmagazine.co.uk/content/features/a-different-slant-reasonable-adjustments-alone-wont-cut-it Blue Badge Awards Leisure Industry https://bluebadgeaccessawards.com/the-awards-2023-24/ Proximo accessible vehicle hire https://proximo.co.uk Able2Wear clothing https://able2wear.co.uk WAVs. Motability and Callum https://news.motability.co.uk/scheme-news/electric-wav-callum-partnership/ UnHidden clothing https://unhiddenclothing.com Apply for Bake Off https://eu.castitreach.com/a/love/gbbo15/welcome UK Pic Credit A wheelchair user in the airport https://spintheglobe.net
They say you shouldn’t kick a person when they’re down. It feels right now the UK Government are down. And unfortunately for them, Phil and Simon have found more reasons why they deserve maybe not a kick but a strong toe poke. Launched in late September 2023, Ask Don’t Assume is the government’s disability awareness-raising campaign. It asks everyone to avoid making assumptions about disabled people as well as asking non-disabled people to become allies. Many disabled-led organisations and influential people dismissed it. We explore why it feels outdated and inappropriate and ask why, if it was created with disabled people, it doesn’t have more validity. Another government initiative is the Disability Confident employer scheme. Quoting from the Disability New Service, Phil suggests the results show it’s not working. Simon flips the statistics around and shows it can be argued that it is doing very well. We know statistics can be manipulated, so leaving that aside, is the campaign any good? Phil gives an update on his recent cancer treatment, and Simon tells of his recent talk at the Royal Television Society on 20 years of disability representation on television. Ask Don’t Assume https://askdontassume.campaign.gov.uk/ Disability Confident article https://www.disabilitynewsservice.com/one-in-three-disability-confident-employers-have-employed-no-disabled-people/ Simon’s talk with Steph Lacey at the Royal Television Society https://rts.org.uk/video/disability-access-journey-simon-minty-and-steph-lacey-rts-cambridge-convention-2023
Forbes Online posted an article which showed the 7 things disabled people have to think about, which non-disabled types don’t have to. Simon thinks it’s informative and helpful, like an access rider. Phil bemoans why we still need to tell people the basics. There are big concerning issues relating to disability right now. Why isn’t the UK Government meeting with the UN about its obligations under the Convention on the Rights of People with Disabilities? How do you justify the possible closures of ticket offices at train stations, which will impact disabled travellers more than most? As is our way, it’s personal, too. We make an appointment with Phil’s radiotherapy treatment and head to the athletics stadium where Simon competed at the World Dwarf Games in Cologne. LINKS Forbes 7 Things Disabled People Have To Think About Every Day https://www.forbes.com/sites/andrewpulrang/2023/07/24/7-things-disabled-people-have-to-think-about-every-day/ Andrew Pulrang @AndrewPulrang Unlimited What is an Access Rider https://weareunlimited.org.uk/resource/creating-your-own-access-rider/ World Dwarf Games website https://wdg2023.com/about-us/ World Dwarf Games instagram https://www.instagram.com/officialwdg2023/ World Dwarf Games Facebook https://www.facebook.com/BKMFeV/?locale=de_DE Dwarf Sports Association UK https://www.dsauk.org Prostate Cancer NHS info https://www.nhs.uk/conditions/prostate-cancer/ United Nations Convention on the Rights of Persons with Disabilities https://commonslibrary.parliament.uk/research-briefings/cbp-7367/ Disability Rights UK Government refuses to attend https://www.disabilityrightsuk.org/news/uk-government-refuses-attend-un-meeting-scrutinising-its-rights-violations-disabled-people Ministers skip UN meeting on disability rights https://www.bbc.co.uk/news/uk-politics-66648764 BBC Tanni-Grey Thompson says big problems https://www.bbc.co.uk/news/uk-england-essex-66665977 for disabled passengers with ticket office closures Photo of Simon competing copyright Anna Spindelndreier https://www.annaspindelndreier.de
In an exceptional show, our guest is the remarkable human that is Sophie Morgan. Sophie often finds liberation on a motorbike. She pops up frequently on TV, presenting Crufts or the Paralympics as a guest on Loose Women or breakfast TV. This past year she’s been promoting her autobiography Driving Forwards: https://uk.bookshop.org/p/books/driving-forwards-a-journey-of-resilience-and-empowerment-after-life-changing-injury-sophie-l-morgan/7029548?ean=9780751582222A Journey of Resilience and Empowerment After Life-Changing Injury. She’s a powerful campaigner for disability and, specifically, better rights on flights for wheelchair users. As can happen when you throw three thoughtful and pragmatic disabled people together, Sophie allowed us to have a far-reaching conversation. What drives her, what does she do when the going gets tough and who supports her? She explains that writing her autobiography allowed her to pause and reflect on her identity and how her passions have formed and re-formed over the year. It turns out that having a ‘chip on your shoulder’ can be a helpful motivator. As we approach the 20th anniversary of her becoming a disabled person, she talks through her immediate and future plans. We know this will include being an artist, something she’s returning to as painting allows her to find a calming place. LINKS Wiki Sophie Morgan https://en.wikipedia.org/wiki/Sophie_Morgan Instagram https://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=web&cd=&cad=rja&uact=8&ved=0CDgQw7AJahcKEwjAirzT3O2AAxUAAAAAHQAAAAAQAw&url=https://www.instagram.com/sophlmorg/&psig=AOvVaw31rMuv3FWWB2IhmqB8CEcM&ust=1692706340763485&opi=89978449 Sophie on Twitter http://@sophmorgTV Driving Forwards: https://uk.bookshop.org/p/books/driving-forwards-a-journey-of-resilience-and-empowerment-after-life-changing-injury-sophie-l-morgan/7029548?ean=9780751582222A Journey of Resilience and Empowerment After Life-Changing Injury Can-Am trikes https://www.can-am-trikes.co.uk Sophie’s page on Can-Am https://can-am.brp.com/on-road/gb/en/discover-can-am/women-of-on-road/women-behind-wheels/sophie-morgan.html Rights on Flights https://www.disabilityrightsuk.org/rights-flights Howdens accessible kitchen https://www.howdens.com/help-and-advice/inspiration/kitchen-ideas/kitchen-makeovers/an-accessible-kitchen-makeover-with-sophie-morgan
Can you fail upwards? Aarian Mehrabani from FlawBored Theatre says that is what they have done. With his theatre company co-founders Samuel Brewer and Chloe Palmer, they have created a play that pushes the boundaries of disability arts and arts more broadly. How has the audience reacted? Do those with a disability react differently to those who aren’t disabled (the answer is sometimes yes)? After creating a show with disability themes, is there a subtle pressure for the next piece of work to move away from the topic? Is that natural, an enhancement or devaluing the subject? And might the term ‘able-anxiety’ be a throw-away joke turning into an accepted word and concept? Sam and Aarian join us to discuss this and more. FlawBored is performing ‘It’s a Mother F**king Pleasure’ in Edinburgh this August (link below). Our show has a few spoilers but also might add to your enjoyment. Listeners discretion! LINKS FlawBored Theatre Company https://www.flawbored.com Tickets to Edinburgh Fringe https://tickets.edfringe.com/whats-on/it-s-a-motherf-king-pleasure performances of It’s a Mother F**king Pleasure.
A bumper show this month. There’s an underlying theme around the erosion or optionality of including disabled people. What do you do when you’re hotel room isn’t ready…especially when you return to the hotel after a night out at midnight and find out? Move to another room? Not so simple if you’re a wheelchair user. Kat Watkins had this happen to her, and we explore what coulda shoulda happened. Did you know there are new consumer duties which may assist differently disabled people (beyond Phil’s favourite group being learning disabled people who fill in forms). Simon and Phil have noticed the word ‘vulnerable’ is creeping back into the language to describe disabled people. Used without context or explanation, as in, ‘financially vulnerable’ or ‘vulnerable to exclusion’, the use of the word feels patronising and retrograde. Is it linked to Covid when lots of people were vulnerable? Is it broader, a moral driver of ‘being kind’? The issue is the word is disempowering, and inclusion isn’t optional nor a favour. There are legal duties underpinning this, as well as a moral imperative. More happily, we enjoy the success Lenny Rush is experiencing. A British actor with dwarfism, only 14 years old, he is absolutely storming it. We ask, was Peter Dinklage in Game of Thrones a watershed moment? LINKS Disabled woman forced to sleep in hotel https://www.theguardian.com/uk-news/2023/may/21/disabled-woman-forced-to-sleep-in-hotel-dining-area-after-booked-room-was-unavailabledining area ‘after the booked room was unavailable’ Disability and Vulnerability paper https://www.unisdr.org/preventionweb/files/40380_didrrnvulnerabilityprimer13031411.pdf New Consumer Duty. https://www.fca.org.uk/publications/policy-statements/ps22-9-new-consumer-duty Speech introducing https://www.fca.org.uk/news/speeches/countdown-consumer-duty#:~:text=For%20new%20and%20existing%20products,apply%20from%2031%20July%202024.a https://www.theguardian.com/uk-news/2023/may/21/disabled-woman-forced-to-sleep-in-hotel-dining-area-after-booked-room-was-unavailablenew duty https://www.fca.org.uk/news/speeches/countdown-consumer-duty#:~:text=For%20new%20and%20existing%20products,apply%20from%2031%20July%202024. Best Bits of Am I Being Unreasonable https://www.youtube.com/watch?v=1O-zYoxtYV0 with Daisy Cooper and Lenny Rush Lenny Rush BAFTA acceptance speech https://www.youtube.com/watch?v=fNUApfTF5gY
Disability talk and debate: what might be the consequences of how we talked about being disabled, reducing benefit fraud, the impact of the digital divide and street harassment, all discussed by Phil and Simon? What are your thoughts on benefit fraud? How should it be tackled? Are the Tories being absurd or frightening? Simon recently saw a play, ‘It’s a Mother f**king Pleasure’ at the Soho Theatre by FlawBored Theatre. The main thrust was irreverent fun ridiculing short-term ‘ableist’ attitudes and disability in society, including introducing ‘able anxiety’ as a term, But it went deeper: If some disabled people say how great life is, does that potentially encourage people to become disabled? How would you get on if you didn’t have a smartphone, email, or Google? Many worry about wifi dropping or the impact of social media, and we talk about those who don’t even go online. We explore the digital divide, explaining how some people are left behind as the world moves online. This can impact your wealth, health and mental well-being. Most people would agree that harassment of anyone on the street is a bad thing and should be stopped such harassment, particularly experienced by women, also impacts disabled people too. We might agree it should be against the law, but how do you police someone ‘staring intently’? Listeners Corner returns about jogging pants and your ‘favourite’ grandchildren. LINKS Minister of Disabled people swanning around i https://news.stv.tv/politics/dwp-under-fire-after-uk-disability-minister-tom-pursglove-appears-to-channel-liam-neeson-in-takenn a flack jacket, helping to "hunt" down benefit cheats! FlawBored Theatre Company https://www.flawbored.com/ The Challenges of tech for disabled people in rural communities. digital divide https://www.cosmic.org.uk/news/our-social-impact-digital-exclusion-cornwall Disability street harassment a crime https://www.bbc.co.uk/news/uk-politics-63916328
Three disability classics in this months show. It’s Phil and Simon debating and exploring. Firstly an independent American short film highlights how to ask for help as a disabled person and how best other people can offer it. Called ‘Act of God’, the film explores different strategies and responses in a witty and thoughtful way. It gets us talking and Simon gets moody whilst Phil stays calm and polite. Language is next: Prof. Amanda Kirby, who is neurodivergent herself wonders how language changes and it’s impact. Her example, ‘awe’ is both good and bad when it becomes the words awkward, awful and awesome, which are three words often attached to neurodiversity. Lastly, a survey of 3000 disabled people found 75% had never heard of the social model. This somehow doesn’t surprise us. Does it matter? That said, we wonder if something is lost by not knowing about it. Sophie Morgan gets mentioned about five times by Phil for some reason. LINKS Act of God article and film https://www.newyorker.com/culture/screening-room/a-tale-of-stubbornness-and-disability-in-act-of-god Prof. Amanda Kirby’s blog Neurodiversity is awesome https://www.linkedin.com/pulse/neurodiversity-awesome-prof-amanda-kirby/?midToken=AQEmmdoN8TENTQ&midSig=0EsUJEBSKqWWE1&trk=eml-email_series_follow_newsletter_01-newsletter_hero_banner-0-open_on_linkedin_cta&trkEmail=eml-email_series_follow_newsletter_01-newsletter_hero_banner-0-open_on_linkedin_cta-null-hlbcs~lf6xyknr~qo-null-null&eid=hlbcs-lf6xyknr-qo Evenbreak survey https://blog.evenbreak.co.uk/2023/01/11/is-the-social-model-of-disability-a-mystery-to-disabled-people/showing 75% of disabled peeps haven’t heard of the social model. Article by Liam O’Dell https://liamodell.com/2023/01/11/social-model-of-disability-medical-disability-employment-scope-evenbreak-yougov-survey/ about the survey Sophie Morgan on Instagram https://www.instagram.com/sophlmorg/
Peter Torres Fremlin joins us this month. He’s a prolific writer and journalist, specifically the Disability Debrief https://disabilitydebrief.substack.com/ which is a newsletter reporting on disability news from around the world and the people that are making change happen. He has lived and worked in many countries, including Bangladesh and Egypt and worked for several large international organisations such as the International Labour Organisation and Humanity and Inclusion (formerly Handicappe International). In a personal and professional conversation, Peter asks if we’ve focused too narrowly on the barrier removal, the societal-based definition of disability. He challenges this approach, suggesting it’s not ‘messy’ enough to encapsulate the diversity of human beings, being those with disabilities and long-term health conditions. He goes further, illustrating what independence means to different people, explaining that once he realised how helpful people were in the countries he lived in, he knew he would be ok. Thoughtful, serious, erudite and quotable, Peter shares his (re)thinking and experiences so far. We hope you enjoy the show and check out the Disability Debrief which he writes. Links The Disability Debrief https://www.disabilitydebrief.org/ Peters own website Desability http://peter.desibility.org/ Peter LinkedIn page https://www.linkedin.com/in/peter-torres-fremlin/ Peter’s Twitter handle https://twitter.com/desibility WHO report on inequalities in health for disabled people disability and health https://www.disabilitydebrief.org/library/topic-health/, respond to the crises exposed by the covid pandemic a landmark study https://www.who.int/news/item/02-12-2022-health-inequities-lead-to-early-death-in-many-persons-with-disabilities on health inequity from the World Health Organization, The Missing Billion https://www.themissingbillion.org/data-dashboard
Dr Ruth Owen OBE started in the tech industry, then became CEO of Whizz-Kidz, a national children’s disability charity. Two years ago, Ruth accepted a demanding and, some consider, contentious role, becoming CEO of one of the big disability charities in the UK, Leonard Cheshire. Ruth is our guest this month. As we spoke with Ruth, we moved away from her career and considerable achievements to find out more about the person behind the titles. What drives Ruth, what influence did her parents, her education, and the institutions she grew up in have on who she is today? As a disabled child, what are her memories, the challenges, and dreams? Is there a connection to why she dresses immaculately and has a need to smell jet fuel? In a fascinating conversation, we discover how much who she was then, determines who she is now. We explore how Ruth can achieve her ambitions to ensure Leonard Cheshire remains relevant and purposeful for those disabled people they engage with and those they don’t. LINKS Ruth’s Twitter handle @Ruth_owenOBE Ruth Owen biography https://windsorleadership.org.uk/dr-ruth-owen-biography Leonard Cheshire Annual accounts 2020/21 https://www.leonardcheshire.org/sites/default/files/2021-11/annual-report-accounts-2020-2021.pdf Whizz-Kidz https://www.whizz-kidz.org.uk
Welcome to the first show of 2023, where Phil and Simon are ready to serve up the years hot topics! In this episode, well discuss everything from the highs and lows of 2022 to the exciting things on the horizon for 2023. First up, well be talking about the joys of hitting the gym as a visibly disabled person. Its not always easy, but the gains are worth it (pun intended). Well also discuss the excitement of welcoming a new grandchild into the world and pondering the meaning of "equal love." Well also be delving into the struggles of dealing with a decline in physical abilities. You know, like when picking up a cup of tea becomes a weightlifting competition and pulling up your trousers becomes a marathon. But were all in this together and will discuss ways to confront these challenges. And last but not least, Simon will be chatting about the thrill of being involved in a BAFTA-winning TV show (and six other awards!) in 2022. We approach serious topics with thoughtfulness and humour, promoting positivity while acknowledging the need to confront reality and find the best way to navigate it.
Creating change in the world of disability takes many skills. One perhaps less recognised is finding the right word for the right moment. Our guest this month is adept at this and would give Gyles Brandreth a run for his money. Kate Nash is the founder and chief executive of Purple Space, a professional development membership hub for disability employee resource groups. Her recently published first book, Positively Purple, discusses the importance of this work. It also "shares" (another Kate word) some of her personal disability history; Kate readily admits it isn’t something she finds easy. Through her work and her book she encourages other people with disabilities to find their voice, tell their story and ultimately achieve what they want to and who they wish to be. Whether she is being a networkologist (working with Employee Resource Groups aka staff networks) or utilising the obstinacity (obstinate and tenacity) that many of us have and often unfortunately need, Kate is a formidable presence in the world of disability advocacy. Links Kogan Page Positively Purple https://www.koganpage.com/product/positively-purple-9781398608474 Kate Nash book Amazon Positively Purple https://www.amazon.co.uk/Positively-Purple-Inclusive-Disabilities-Flourish/dp/1398608475/ref=sr_1_1?crid=P9KS0JSTCIBW&keywords=positively+purple&qid=1669031572&sprefix=positively+purple,aps,69&sr=8-1 various formats Purple Space https://www.purplespace.org Kate Nash LinkedIn https://www.linkedin.com/in/kate-nash-obe-8bb1994/ Purple Light Up https://twitter.com/purplelightup?lang=en Twitter
Phil and Simon are ripping it up, pushing the conversation, and exploring the boundaries of where we are today when it comes to disability. There’s fun, seriousness, thoughtfulness, respectful disagreement, celebration and controversy We ask why does the ‘life stops after becoming disabled’ idea remain so strong? Phil explores his concerns about Ellie Simmonds going on BBC’s Strictly Come Dancing, and Simon vehemently disagrees. We highlight the worrying crisis for disabled people in being able to recruit PAs and support workers. If that wasn’t enough, Phil has an idea for some merch. Right at the end, we have a packed inbox of brilliant and interesting comments from you. LINKS GOING BLIND AND TRAVEL Guardian article https://www.theguardian.com/world/2022/apr/02/canada-family-tour-children-blindness on the Canadian family travelling the world Travel Eyes https://www.traveleyes-international.comfor blind travellers STRICTLY COME DANCING Strictly Come Dancing John Whaite https://www.instagram.com/reel/CjFkpcvI7xu/?igshid=MDJmNzVkMjY= brilliant Instagram video about difference on Strictly Ellie Simmonds Instagram https://www.instagram.com/elliesimmonds/?hl=en Nikita Kuzmin Linktr.ee https://linktr.ee/nikitakuzmin (Ellie’s dance partner) CRISIS IN CARE WORKERS Guardian article https://www.theguardian.com/society/2022/aug/21/staffing-crisis-leaves-many-english-care-home-residents-basic-needs-unmetStaffing crisis in care homes Personal tweet https://twitter.com/BnsJaneCampbell/status/1585242127155417088?s=20&t=S5acxKcjYFF_AEjil2DsEgBaroness Jane Campbell on recruiting a PA Video of House of Lords https://www.parliamentlive.tv/Event/Index/857e9f3d-34ac-4385-9342-0a1e42b19c2e Care Crisis Q&A 7 Sept 2022
Professor David Turner is a social and cultural historian with expertise in disability, medicine, gender and the body. He is our guest this month. David’s current research explores the history of disabled people’s political activism in Britain since the eighteenth century. In an accessible and illuminating conversation, he tells us of the earliest known recorded documentation of disability rights and political activism. This includes the book Biography of the Blind’, first published in 1821, written by the remarkable James Wilson. We learn why what was said to the British Government by disabled people way back in 1832, still resonates today. With David’s expertise and insight, we learn how 200 years of disability history can inform us today and into the future. LINKS Home page including publications list https://www.swansea.ac.uk/staff/d.m.turner/ James Wilson’s Biography of the Blind, https://www.google.co.uk/books/edition/Biography_of_the_Blind_including_the_liv/in1ZAAAAcAAJ?hl=en&gbpv=11821 on Google Books. On Twitter https://twitter.com/DrDavidMT @DrDavidMT Disability History pod and video https://genealogystories.co.uk/professor-david-turner/with Prof Turner Disability History: Thinking Differently https://docs.google.com/document/d/1G4pexfTIFJBzEZ2PByOlN0qH3kF09kFykmmNky6hPa8/edit About the Past resource page Blog about how Prof Turner https://www.pearson.com/uk/educators/schools/news/schools-blog/2022/03/shining-a-light-on-disability-history.htmlhelped put disability in the teaching curriculum with one teacher Historic England History of Disability https://historicengland.org.uk/research/inclusive-heritage/disability-history/ Year 1050 to present Tom Shakespeare Collection: Disabled Lives https://farmerofthoughts.co.uk/collection/disabled-lives/
Our guest is Gordon McCullough, the Chief Executive Officer of the Research Institute for Disabled Consumers (RIDC). If you’ve not come across the RIDC, they are a well-established research organisation with a panel of more than 3500 disabled people. As Gordon has said, "No business would actively exclude a fifth of its potential customer base, yet many do by not being accessible to disabled people, and this is where the RIDC comes in". Gordon explains how they carry out their qualitative and quantitative research through the fantastic panel they have created. Carrying out valuable research for organisations is part of their role; they also carry out research they have identified from the panel. We talk with Gordon about the biggest issues for disabled people during Covid and why electric vehicles might leave disabled people behind. He also talks about being a non-disabled person in a user-led organisation - what did he have to learn, and what does it mean to the people RIDC work with? Phil is the Chair of RIDC, so he leaves some of the questions to Simon this time. We suspect by the end of the show, you’ll want to join the panel and add your voice to bring about change, you can by clicking the link below. Links RIDC website https://www.ridc.org.uk Join the panel https://www.ridc.org.uk/our-panel Online or telephone 020 7427 2460 or email RESEARCH@RIDC.ORG.UK Selected research projects https://www.ridc.org.uk/content/research-and-consultancy/our-insights Twitter RIDC http://@RiDC_UK
Some people fear disability and comedy. Not so our guest this month. Steven Verdile created the satirical website The Squeaky Wheel to create and publish funny stories with disability as a theme. Steven explains how the site came about, what inspired the name and how the growing team of writers wrote the material. An expanding and loyal readership means the site is thriving. It’s even been the answer to a US newspaper crossword clue. Making it sustainable is a wish of Steven’s. Making sure they push the boundaries of comedy but don’t step over the line of appropriateness is a frequent consideration. Making it professional and paying people is in the plan. Take a dive into some of the funniest headlines and then listen to the pod and find out what The Squeaky Wheel is all about. Website https://the-squeaky-wheel.com Instagram https://www.instagram.com/thesqkywheel/ Twitter @TheSqkyWheel Facebook https://www.facebook.com/TheSqkyWheel Steven https://www.stevenverdile.com Private Eye https://www.private-eye.co.uk The Onion https://www.theonion.com BBC Access All https://www.bbc.co.uk/programmes/p02r6yqw
If disability and television are your thing, you will have noticed some significant improvements of late. On-screen, we know #RepresentationMatters but behind the camera is equally important. Our guests this month are two of the people who are instrumental in changing the landscape of disability and television. Nichola Garde is the Project Manager of Elevate. This is the BBC’s mid-career-boosting scheme for behind screen talent who have a disability. Allan MacKillop is Disability Team Leader covering both creative and workforce strategy at the BBC. A massive brief with high expectations. We asked Allan and Nichola why so much change now? What do they think are the best methods for the improvement of disability and television? We talk pan-industry as Channel 4, ITV, Netflix, and others push this forward. Indeed, Netflix has a genre of disability-related programmes now. We ask Allan and Nichola’s advice on getting in and getting ahead in the industry. Finally, we offer them a magic wand to see what else is on their wish list. Naturally, we ask how they got to where they are and what adjustments they need to be the best they can be. LINKS Twitter @NicholaGarde @AllanMacKill BBC Elevate https://www.bbc.com/creativediversity/elevate/ BBC Extend https://www.bbc.co.uk/careers/trainee-schemes-and-apprenticeships/extend/ ITV Disability https://www.itv.com/disability/ Channel 4 Disability https://www.channel4.com/press/news/channel-4-launch-new-initiative-help-mentor-screen-disabled-talent Netflix and BBC https://about.netflix.com/en/news/bbc-and-netflix-form-partnership-to-develop-shows-from-disabled-creatives Netflix Disability shows https://www.netflix.com/gb/browse/genre/81594474
It’s a fantastic show this month - insight, depth, nostalgia, vulnerability, power and the future. The BBC recently broadcast a docudrama telling the story of the disability rights campaigners of the early 1990s in the UK. Using the love story between two key protagonists, Then Barbara Met Allan is a landmark piece of television. Not only because of the story it told but the number of creative disabled people who made it. It allows Phil and Simon to take a joyful and triumphant walk and wheel down memory lane to talk about their memories of this time and the impact it had on the country as well as so many individuals. Slips trips and falls are a common occurrence for some with a disability. Unfortunately, Phil recently took a tumble. When you’re campaigning for social justice, you’re seemingly invincible but in reality, we can all experience moments when things don’t go as planned. What can you do, what can you change and does the fall or the shame hurt the most? We talk about what is happening to disabled people in Ukraine. We have a remarkable update from Sarah, one of our immunocompromised guests from the previous show and a lovely Listeners Corner on the impact it made. Geoff tells us all about Yellow Jackets and there’s a shout out for your help on a future show. LINKS Then Barbara Met Alan Wikipedia https://en.wikipedia.org/wiki/Then_Barbara_Met_Alan BBC iPlayer https://www.bbc.co.uk/programmes/m0015p4q Disabled people’s Direct Action Network https://en.wikipedia.org/wiki/Disabled_Peoples_Direct_Action_Network Disability Rights https://www.ucu.org.uk/media/4260/International-Day-of-Disabled-People---UCU-wall-chart/pdf/ucu_disposter.pdf, a history as a wallchart BBC article https://www.bbc.co.uk/news/disability-34732084 When disabled people took to the streets to change the law Barbara Lisicki https://the-ndaca.org/the-people/barbara-lisicki/ aka Wanda Barbara Johnny Crescendo https://www.disabilityartsonline.org.uk/Johnny-Crescendo-interview aka Alan Holdsworth Disabled people in Ukraine https://www.internationaldisabilityalliance.org/content/through-conflict-ukraine-what-happens-persons-disabilities Sophie Morgan book https://uk.bookshop.org/books/driving-forwards-a-journey-of-resilience-and-empowerment-after-life-changing-injury/9780751582246 Yellow Jackets https://www.sho.com/yellowjackets
Coronavirus restrictions are easing here in the UK and around the world. We are said to be on the road to freedom; masks are dropping, hand sanitiser solidifying, and were willing to take a chance again. For many, this is excellent news, but not for all. For those who are immunocompromised (500,000 people UK) or clinically extremely vulnerable (3.7m people UK), the road to freedom has many potholes. They have a greater risk of catching Covid, and they are more likely to go to a hospital, more likely to be admitted to ICU, and face an increased risk of dying. Life for this minority is still restricted. As the majority move on, is there a risk of people being left behind? We reached out to some affected listeners and spoke with them about the impact and their current lives. Sarah Baxter, who works for a UK bank and Gareth Berliner, is an actor and comedian. Both are immunocompromised. They tell us about asking a fellow train passenger to put on their mask, of donating work clothes to charity in March 20202, realising future office visits will be few. Theres even a fortuitous career change as the new workplace adheres to strict Covid protocols. As well as Sarah and Gareth, we hear from Christina Clegg in the UK and Denise Rei and Jen Risser in the USA. All five of our guests talk of the early days of the pandemic, when for a few months, we were unified when we all faced a significant health risk. The stats might not lead the news bulletin, but Covid-19 is still here. What can society and individuals do to avoid a twin-track society? How do we consider the needs of the few whilst allowing the many to continue? LINKS Join Zoe https://covid.joinzoe.com/data Covid info, trackers and stats Guardian Jan 2022 https://www.theguardian.com/world/2022/jan/22/more-people-will-die-fears-clinically-vulnerable-england-axes-plan-b?CMP=Share_AndroidApp_Other first article "More people will die fears." Guardian Jan 2022 https://www.theguardian.com/commentisfree/2022/jan/26/disabled-people-plan-b-restrictions?CMP=Share_iOSApp_Othersecond article "Disabled people Plan B restrictions." Colin Angus on Twitter https://twitter.com/victimofmaths/status/1485570730867765251?s=12 Sheffield University | Health inequalities | COVID-19 | Data visualisation Selected info __ __ ICNARC Statistics and research https://www.icnarc.org/our-audit/audits/cmp/reports Intensive Care National Audit and Research Centre. Levels of dependency prior to admission to acute care (Dec 2021) report shows 89.5% lived without assistance, 10.4% had some assistance, 0.4% had total assistance. Sarah Baxter on Twitter http://@EssJayBaxter Gareth Berliner on Twitter http://@GarethBerliner
We had a chat with regular guest Joanna Wootten and cultural critic Geoff Spink to ask them their disability or Deaf stand out moment from 2021 and what they’re excited about in 2022. We added our highlights in there too. The stand out moments for us is very broad and includes Strictly Come Dancing, Abnormally Funny People comedy at the Royal Festival Hall, the next Lewis Hamilton racing in Bahrain, a William Boyd book, ’ Any Human Heart’ and the film Cyrano with Peter Dinklage. In addition, the UK Government’s Disability Strategy and the second reading of the British Sign Language Bill in the House of Commons make the list. Let us know what are your favourite moments. Enjoy the show. LINKS Abnormally Funny People https://abnormallyfunnypeople.com Abnormally Funny People sing https://www.youtube.com/watch?v=MZIhZpkDCck‘Stand By Me’ Lockdown version 2021 Any Human Heart https://uk.bookshop.org/books/any-human-heart/9780241981450 print Any Human Heart https://www.audible.co.uk/pd/Any-Human-Heart-Audiobook/0241991307?qid=1643119666&sr=1-1&ref=a_search_c3_lProduct_1_1&pf_rd_p=c6e316b8-14da-418d-8f91-b3cad83c5183&pf_rd_r=29TT9J7TDQ1EDX5P99YM audio British Sign Language Bill https://bills.parliament.uk/bills/2915 Cyrano https://www.imdb.com/title/tt12889404/ film IMDB Cyrano https://www.unitedartistsreleasing.com/cyrano/ film website National Disability Strategy https://www.gov.uk/government/publications/national-disability-strategy Rotax MAX Challenge Grand Finals 2021 https://bit.ly/3KNK1R4Kart Racing in Bahrain Albert Friend 45:33 in Strictly Come Dancing https://www.youtube.com/watch?v=QejOzrlovTQRose and Giovanni YouTube Succession https://www.digitalspy.com/tv/ustv/a38013013/succession-season-4-release-date/ season 4 Digitial Spy
Bristol recently advertised for a Commissioner for their Disability Equality Commission. You need skills and experience and be expected to be a spokesperson. Time commitment is up to seven working weeks a year. Salary, zero. How much do we value equalities work? What value do we give to different contributions? When should we get paid, and when is it voluntary? How do we value those who help achieve it? There has been all-party support for some new play parks for disabled adults in Bristol again, coincidentally. So good news? Well, it might be, but why has this cropped up? A mum of a disabled adult said they were met with verbal abuse and complaints when using play areas in Bristols parks. They want to create a safe, fun, accessible and life-changing disabled adult play park". Phil and Simon grapple with the conflict of why cant disabled adults play where everyone else does; why are those who are the abusers not being moved or educated? Is this a pragmatic and beneficial solution? Geoff rocks up with his cultural pics: a book called Moving by Jenny Eclair and TV show Baron Noir, on Prime. A bumper Listeners Corner with your brilliant emails and messages. We finish with a heartfelt Christmas message. See you next year and thank you for listening. LINKS Bristol Disability Equality Commission https://bristoldef.org.uk/a-disability-equality-commission-for-bristol/ Playing Parks in Bristol https://bbc.in/3nYDpGb Moving by Jenny Eclair book https://uk.bookshop.org/books/moving-the-richard-judy-bestseller/9780751550955 Moving by Jenny Eclair audiobook https://www.audible.co.uk/pd/Moving-Audiobook/B018W5KW2K?qid=1640098973&sr=1-1&ref=a_search_c3_lProduct_1_1&pf_rd_p=c6e316b8-14da-418d-8f91-b3cad83c5183&pf_rd_r=24N23P3BGGD90B00QCGX Baron Noir IMDB https://www.imdb.com/title/tt4835480/
Two topics feature in this months podcast. Gardners might use the term perennials to describe them. Others might say weeds that never quite go away. Two topics we discuss and we disagree on, but we have an enjoyable and explorative discussion getting there. Assisted suicide, aka assisted dying, is back in the spotlight as Baroness Meacher’s Assisted Dying Bill passed through the House of Lords at the end of October. Whilst this won’t directly change the UK legislation (currently, assisted suicide is illegal), it shows the debate is very much alive. Phil is opposed to changing the law, and Simon asks him why. Do positive action schemes, disability training, and targets work? In his MacTaggart lecture, scriptwriter Jack Thorne suggested that to get more disabled people on TV. It’s time for quotas. Mind you, it feels like a golden period for disability appearing on television. After years of encouragement, are TV execs commissioning and casting more? Have the schemes finally paid off? Or has the murder of George Floyd and that which followed rippled across the pond and changed everything? Simon thinks yes, Phil asks him why. Geoff tells us his latest cultural recommendations, including the return of Succession and what he thinks of John le Carre’s final book, Silverview. There’s a great Listeners Corner to finish. LINKS ASSISTED SUICIDE Baroness Meacher bill on Assisted Dying https://bit.ly/3HGlFqW Not Dead Yet UK http://notdeadyetuk.org/ Baroness Jane Campbell article https://www.theguardian.com/commentisfree/2021/oct/22/disabled-people-assisted-dying-bill Colin Low, Tom Shakespeare and Christie Arnsten article https://bit.ly/3Fvq660 DISABILITY AND TV Jack Thorne MacTaggart Lecture Aug 2021 https://variety.com/2021/tv/global/jack-thorne-disability-quota-mactaggart-1235046856/ Royal Television Society panel discussion on disability and television https://bit.ly/3kYH7xU CULTURAL CORNER Succession https://www.imdb.com/title/tt7660850/ Silverview - John le Carre https://www.waterstones.com/book/silverview/john-le-carre/9780241550069 Here’s where to start reading John le Carre blog https://bit.ly/3x75YV7
In the UK one of the first pieces of disability rights legislation was the 1970 Chronically Sick and Disabled Persons Act https://en.wikipedia.org/wiki/Chronically_Sick_and_Disabled_Persons_Act_1970. Over the next three decades, disability rights campaigners made a distinction between illness and impairment, for understandable reasons but perhaps with hindsight, this has had unintended consequences. Language is returning to including both, so disabled people and people with long term health conditions is a common phrase. So if you created a Venn diagram of disability and of illness, how big would the intersection be? To explore this we invited three people who have fine minds and long term health conditions. We speak with UK based Catherine Hale, Founder and Director: Chronic Illness Inclusion, to US-based Katie Elizabeth who is editor and author and a director of Stigma Fighters and David Ager, a Location Analytics Specialist who comes with his personal take. We had a fantastic, personal and insightful conversation. We highlight why some people with non-visible conditions feel like imposters, or they are not always believed. Why identifying as disabled when you’re long term ill is positive. Where traditional models of disability like the social and medical models help and hinder. There’s some compare and contrasts with US and UK viewpoints and we finish by asking our guests, what would help most in the future? LINKS Twitter accounts for guests and their connected organisations Catherine Hale https://twitter.com/octoberpoppy Katie Elizabeth https://twitter.com/shegoeso David Ager https://twitter.com/TheAgermeister Links to further reading Chronic Illness and Inclusion Project (CIIP) – Mobilising a Collective Voice for Social Change https://www.drilluk.org.uk/wp-content/uploads/2020/12/Chronic-Illness-summary.pdf What are energy impairments? https://chronicillnessinclusion.org.uk/2021/04/28/what-are-energy-impairment-and-elci/ Images from Rea, thank you, Rea. https://www.reastrawhill.com University of Leeds Heres a link to Reas blog https://www.reastrawhill.com/post/chronic-illness-and-disability-am-i-disabled
Delivering training on disability means you get some excellent questions on the subject. A colleague of ours was recently asked, ‘Is impotence a disability under the Equality Act?’ We try and work it out by exploring the impact and then ask, what sort of discrimination might arise to see a case? After last month’s hugely popular show about the word Ableism https://www.buzzsprout.com/1126850/episodes/9060828we move to another relatively new term - microaggressions. Defined as ‘an indirect, subtle or unintentional form of discrimination, we ponder when to let it slide and when do you tackle it? We wonder what might be the impact on someone after a 1000 of these? WeThe15 campaign launched recently. Their website states, ‘WeThe15 is sport’s biggest ever human rights movement to end discrimination…of the world’s 1.2 billion persons with disabilities who represent 15% of the global population.’ Phil has some doubts, what is different, what change will come about or is it another campaign that lights up the sky before fading? Or as Simon suggests, is this is what’s needed, constant wheel-reinvention to keep the agenda moving forward? Geoff tells us about two of his current favourites - The White Lotus and Have You Heard George’s Podcast? We round off with a bumper Listeners Corner. Maybe we mention you? Take a listen via the link below. LINKS Erectile dysfunction https://www.nhs.uk/conditions/erection-problems-erectile-dysfunction/(impotence) defined Micro-agressions Wiki https://en.wikipedia.org/wiki/Microaggression There are many blogs that explore this subject well. Have a search and read. Here’s one from the BBC on language https://www.bbc.com/worklife/article/20210330-the-harmful-ableist-language-you-unknowingly-use. WeThe15 https://www.wethe15.org The White Lotus on Sky https://www.sky.com/watch/title/series/ed2f46ed-0636-4585-ac14-88b553f3d0cb The White Lotus IMDB https://www.imdb.com/title/tt13406094/ Have You Heard George’s Podcast https://www.georgethepoet.com? George the Poet
Have you noticed a change in how disability is discussed? For example, words like ‘ableism’ and ‘internalised ableism’ are perhaps not mainstream but more commonplace, especially on social media. We were thrilled when Professor Fiona Kumari Campbell, Professor of Disability and Ableism Studies, University of Dundee, agreed to come on the show. In an authoritative and entertaining interview, Fiona explains the most dominant use of ‘ableism’ isn’t as intended. Fiona’s concerned it is being used as a sledgehammer, without explanation, and its hostile use creates them and us. Fiona reminds us social theories are explanatory narratives, making sense about the world and a watershed moment for some, but they are theories, the social model isn’t a fact. Fiona suggests being disabled can be a constant state of ambivalence with the negative reminders we frequently receive having a cumulative impact. Fiona encourages us to have dialogue, to listen and above all else, to read more. It’s a treat to listen, think and absorb Fiona’s thinking, her concerns about what is happening, what’s been lost along with what we can do and what we need to think about in the future. And some reading and watching recommendations for you, Geoff returns with his Cultural Corner. This month it’s Mare of Easttown and The Shipping News. BIOGRAPHY Professor Fiona Kumari Campbell, is Professor of Disability and Ableism Studies in the School of Education & Social Work, University of Dundee, Fiona is an interdisciplinary scholar-activist and not a traditional academic, being biracial, disabled, LGBT and from a religious minority background. Fiona has written extensively on issues related to disability – a philosophy & sociology of ableism, disability in Sri Lanka, law, biotechnology and is recognised as a world leader in scholarship around studies in ableism. FURTHER INFORMATION AND LINKS Papers and publications on Academia Educ https://dundee.academia.edu/FionaKumariCampbell Contours of Ableism https://www.palgrave.com/gp/book/9780230579286 - Professor Fiona Kumari Campbell, Palgrave Macmillan, 2009 Internalised Ableism: The Tyranny Within https://link.springer.com/chapter/10.1057/9780230245181_2from Contours of Ableism (also Internalised Oppression) United Nations Human Rights video https://vimeo.com/492480733 - What is Ableism? PEOPLE AND TOPICS FIONA MAKES REFERENCE TO Sayonara CP / Goodbye CP https://www.imdb.com/title/tt0234669/ Japanese film featuring people with Cerebral Palsy 1972 Theory as a Liberatory Practice https://digitalcommons.law.yale.edu/yjlf/vol4/iss1/2/“I saw in theory…a location for healing” bell hooks, Glorian Jean Watkins https://en.wikipedia.org/wiki/Bell_hooks Articulating a sociology of desire exceeding the normative shadows https://open.library.ubc.ca/soa/cIRcle/collections/ubctheses/831/items/1.0092394 by James Overboe "I refuse to be an accountant of atrocity." https://www.jstor.org/stable/2999172 Randall Kennedy https://hls.harvard.edu/faculty/directory/10470/Kennedy GENERAL BBC article on micro-agressions and ableist language https://www.bbc.com/worklife/article/20210330-the-harmful-ableist-language-you-unknowingly-use NCCJ Handy primer with disability essentials https://www.nccj.org/ableism Thank you to <
A full show, we have several current topics and two brilliant guests. Author Victoria Scott has written a book that is, influenced by her relationship with her sister (who is disabled) and the family dynamics when deciding if medical intervention is the right path. Geoff Adams-Spink tells us about Netflix smash, Lupin plus a new Radio 4 show, The Confessional where celebrities admit to behaviour they are not always proud of. And of course, you have Phil and Simon rattling through topics that have got them thinking. Simon cites disabled lawyer, Gregory Mansfield, whose insightful tweets show disability and ability happily co-exist and blasts those who get stuck at the ‘dis’ part. Phil wonders if Ambassadors actually have power and influence. We also discuss the seemingly more easy question of compulsory vaccinations for people working in care or support roles. Links to everything are below. We hope you enjoy the show. Gregory Mansfield on Twitter https://twitter.com/GHMansfield FT Vaccine compulsory for some jobs https://on.ft.com/2LV1Dkw Paywall BBC New disability Ambassador https://www.bbc.co.uk/mediacentre/2021/bbc-announces-cerrie-burnell-disability-ambassador?at_medium=custom7&at_campaign=64&at_custom2=twitter&at_custom3=%2540bbcpress&at_custom1=%255Bpost+type%255D&at_custom4=3AB064B6-D5A5-11EB-A30E-DC0B16F31EAE Netflix Lupin trailer on YouTube https://www.youtube.com/watch?v=ga0iTWXCGa0 BBC Radio 4 The Confessional https://www.bbc.co.uk/programmes/m000v84b Victoria Scott on Twitter https://twitter.com/Toryscott Patience by Victoria Scott https://uk.bookshop.org/books/patience-9781800240889/9781800240889Bookstore Patience by Victoria Scott https://www.goodreads.com/book/show/57329751-patienceGoodreads
